Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.

Advocacy

Support Groups

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RESOURCE: How to Navigate the Insurance Appeals ProcessDownload PDF

Learn More Through KC Journeys

Keratoconus Journey: Baylen

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In 5th grade, Baylen started wearing a contact lens in his left eye to correct for his nearsightedness. While the contact seemed to manage the vision issues he was facing at the time, it wasn’t until…

Keratoconus Journey: Adam

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When he had first heard of cross-linking, Adam was initially terrified. However, he knew that he could no longer put up with the pain and frustration of dealing with contact lenses…

Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.

Keratoconus

Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.

Cross-Linking

Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

Explore Our Keratoconus Infographic Download PDF

It is estimated that...

1 Out of Every 2,000

persons in the general population have Keratoconus1

You can find more information from the National Keratoconus Foundation.

1. Kennedy R. H., Bourne W. M., Dyer J. A. A 48-year clinical and epidemiologic study of keratoconus. The American Journal of Ophthalmology. 1986;101(3):267–273. doi: 10.1016/0002-9394(86)90817-2.

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

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3 days ago

Living with KC

#FactFriday - While there is currently no cure for #keratoconus, available treatment options focus on improving vision and/or halting the progression of the disease. ow.ly/YhwA50vvEct ... See MoreSee Less

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3 days ago

Living with KC

If you're #LivingWithKC and traveling this summer, it's important to bring the right gear to properly care for your #contacts! What do you always have to remember to pack? ow.ly/4A6c50vvDQe ... See MoreSee Less

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5 days ago

Living with KC

Healthy Vision Tip: Know Your Family History ... See MoreSee Less

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Learn More Through Our Twitter Page

#FactFriday - While there is currently no cure for #keratoconus, available treatment options focus on improving vision and/or halting the progression of the disease. https://t.co/SbFXoikYj8

If you're #LivingWithKC and traveling this summer, it's important to bring the right gear to properly care for your #contacts! What do you always have to remember to pack? https://t.co/B4emdiCiCP

Shanice isn't letting her #keratoconus get in the way of her passion: playing football at a professional level. Visit our blog to read her #KCJourney and how she's able to manage her KC and remain on the field. https://t.co/VfLMfTred4

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