Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

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Learn More Through KC Journeys

Keratoconus Journey: Nishi

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In November 2016, about seven months after cross-linking became FDA approved and over two years after her initial diagnosis, Nishi received the procedure in her left eye…

Keratoconus Journey: Gage

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With the help of his doctors and corneal cross-linking, Gage is happy to be living on campus and being able to experience college the way he had always envisioned…

Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.

Keratoconus

Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.

Cross-Linking

Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

It is estimated that...

1 Out of Every 2,000

persons in the general population have Keratoconus1

You can find more information from the National Keratoconus Foundation.

1. Kennedy R. H., Bourne W. M., Dyer J. A. A 48-year clinical and epidemiologic study of keratoconus. The American Journal of Ophthalmology. 1986;101(3):267–273. doi: 10.1016/0002-9394(86)90817-2.

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

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6 hours ago

Living with KC

#FactFriday - 4.2 million Americans ages 40 and older are visually impaired. #LowVisionAwarenessMonth nei.nih.gov/nehep/lvam ... See MoreSee Less

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9 hours ago

Living with KC

Still confused about which #crosslinking procedures are FDA approved? Read our blog to clear up and confusion! www.livingwithkeratoconus.com/blog/what-to-know-about-fda-approved-treatments/ ... See MoreSee Less

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1 week ago

Living with KC

Did you know that if you donate your cornea, you could be able to restore sight to 2 people? This #NationalDonorDay we want to say thanks to all the registered donors! www.donatelife.net/statistics/ ... See MoreSee Less

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Learn More Through Our Twitter Page

#FactFriday - 4.2 million Americans ages 40 and older are visually impaired. #LowVisionAwarenessMonth https://t.co/NNoEoeczxi

Still confused about which #crosslinking procedures are FDA approved? Read our blog to clear up and confusion! https://t.co/CG73OTR3R2

Do you know if your insurance covers #crosslinking? Visit our website to find out: https://t.co/B5stNJdheA

Did you know that people living with low #vision are still able to maintain their independence & quality of life? Watch this video from the @NatEyeInstitute Health Education Program to hear stories of hope & independence! #LowVisionAwarenessMonth https://t.co/7tWFN0GxZd

"I didn't know how I would be able to do anything without my vision...it crushed me." - Aaron following his #keratoconus diagnosis. https://t.co/4PKt7bwQEo

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