Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.

Advocacy

Support Groups

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RESOURCE: How to Navigate the Insurance Appeals ProcessDownload PDF

Learn More Through KC Journeys

Keratoconus Journey: Brent

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Brent is not known for slowing down when things get tough. As a personal trainer, he tends to power through. He’s accustomed to encouraging his clients to do the same, but when he began having trouble…

Keratoconus Journey: Baylen

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In 5th grade, Baylen started wearing a contact lens in his left eye to correct for his nearsightedness. While the contact seemed to manage the vision issues he was facing at the time, it wasn’t until…

Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.

Keratoconus

Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.

Cross-Linking

Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

Explore Our Keratoconus Infographic Download PDF

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

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20 hours ago

Living with KC

If your #patients have never heard of #keratoconus before, what do you tell them? Living with KC shares 7 important facts to help them better understand the condition. bit.ly/2p43bgJ ... See MoreSee Less

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6 days ago

Living with KC

#Confidence inspires those around you! If you're #LivingWithKC, when do you feel the most confident? ... See MoreSee Less

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Did you know that frequently rubbing your eyes may result in dark circles under the eyes? Medical News Today (@mnt) takes a look at some causes and risk factors, as well as treatments. https://t.co/8RTg4PLGNP

Wear protective eyewear when playing sports or doing activities around the home.

Most protective eyewear lenses are made of polycarbonate, which is 10 times stronger than other plastics. Many eye care providers sell protective eyewear, as do some sporting goods stores.

For nearly 40 years, Deborah was #LivingWithKC but had never met anyone else with the condition. During one of the National Keratoconus Foundation #KCFamilySymposiums, she was able to connect with others who had KC for the first time. https://t.co/hWfN8Y7Zp1

#WorldKCDay is on Sunday, November 10th! If you're interested in participating, stay tuned for more information from #LivingWithKC and the National Keratoconus Foundation! https://t.co/vFElD0uzbh

I went to an *actual* optometrist today and he said that I don't even need to wear glasses and that the reason I have blurry vision is because I have keratoconus.

My gosh, my entire life has been a lie.

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