Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.


Support Groups

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RESOURCE: How to Navigate the Insurance Appeals ProcessDownload PDF

Learn More Through KC Journeys

Keratoconus Journey: Dan

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In his early teens, Dan first began noticing a minor change in his vision but assumed it was nothing serious, since it wasn’t affecting his daily life. His vision never impacted his studies…

Keratoconus Journey: Bekah

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Bekah went to her local Department of Motor Vehicles (DMV) near Austin, Texas, to renew her expiring driver’s license, but she didn’t expect what would happen next…

Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.


Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.


Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

It is estimated that...

1 Out of Every 2,000

persons in the general population have Keratoconus1

You can find more information from the National Keratoconus Foundation.

1. Kennedy R. H., Bourne W. M., Dyer J. A. A 48-year clinical and epidemiologic study of keratoconus. The American Journal of Ophthalmology. 1986;101(3):267–273. doi: 10.1016/0002-9394(86)90817-2.

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

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7 hours ago

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4 days ago

Living with KC

At 15 years old, Max learned he was #LivingWithKC during a routine eye exam. Now years later, Max and his dad reflect on their journey with #keratoconus. ... See MoreSee Less

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Ophthalmologists and optometrists play complementary roles in #eye care. #Optometrists provide primary vision care, diagnose & treat eye conditions, and fit contact lenses. #Ophthalmologists are medical doctors that can perform eye surgery, such as #crosslinking. @StephenCurry30

Bleacher Report@BleacherReport

Curry getting all types of questions about his eye revelation 😬

(via @MarkG_Medina)

Hey #LivingWithKC Community - If you like what you see on our Twitter page, don't forget to follow @LivingwithKC on Facebook and Instagram!

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