Living With KC manages a variety of social media channels (Twitter, Facebook, Instagram) and strives to create an informative and supportive community for people living with keratoconus. The goal of these channels is to provide followers with a safe place where they can share information and have meaningful conversations.
In other terms, we welcome the opportunity to hear your personal stories and experiences with keratoconus. To do so, we’ll do our best to provide useful information and discuss relative topics that are important to you, listen to your feedback, and answer your questions.
At times, it may seem like our posts and interactions are limited. Living With KC is sponsored by Avedro, a privately held pharmaceutical and medical device company with approved and development-stage products, so we must adhere to specific ethical, legal, and regulatory standards that are unique to our healthcare industry. This means we are unable to engage in certain topics or discussions.
To ensure that the Living With KC communications are consistent with our mission, here are some simple guidelines and disclaimers that explain how we use our social media channels. We hope you will find these useful for understanding the rationale behind the Living With KC resources and responses.