Cookie Settings

This website uses cookies to improve your experience while you navigate through the website. Out of these cookies, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may have an effect on your browsing experience.

Essential Always Enabled

Essential cookies help the website function by enabling functionality and remembering user choices. The website will not function properly without them.

Name	Provider	Purpose	Expires
pint-checkbox-non-necessary	livingwithkeratoconus.com	Remembers your selected cookie consent preference	3 months
pint-cookies-accepted	livingwithkeratoconus.com	Remembers that you have made a cookie preference	1 Year

Non-Essential

Non-Essential cookies are those that help compile site statistics or are provided by third-party services, like ad networks, real-time support chat, or videos.

Name	Provider	Purpose	Expires

Community Networks

There’s a KC community ready to help

There are several KC community forums and message boards online dedicated to better understand this disease. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the KC community.

Here are a few groups you can join to participate in the conversation.

Keratoconus Group (Follow)

Keratoconus Group (Join)

Keratoconus Community

Keratoconus on Reddit

The following is a list of resources for current or potential patients and their families. If you have a specific medical question, it is best to consult your doctor.

National Keratoconus Foundation

Alliance for Eye and Vision Research

Cornea Research Foundation of America

Prevent Blindness

Stay up to date

Receive the latest information, resources, and support to help you take on keratoconus.

Social Posts

Facebook

Living with KC

Tiktok

@livingwithkeratoconus

Instagram

livingwithkc

Notice "The Rub" - a habit you may not notice coul

Notice "The Rub" - a habit you may not notice could be a sign of a vision problem you shouldn't ignore. Rubbing your eyes can be both a cause and a symptom of keratoconus, or KC, a progressive eye disease that may lead to significant vision loss.

Take the quiz at CouldItBeKC.com.

Shanice isn't letting her #keratoconus hold her ba

Shanice isn't letting her #keratoconus hold her back from competing as part of the U.S. Women’s Tackle Football National Team!

Prior to bringing home the gold medal at the IFAF World Championship in Finland this year, Shanice spoke to the Fairfax County Times to discuss her experience with progressive keratoconus and playing football at a professional level. Link in bio!

When Emily was in the eighth grade and received he

When Emily was in the eighth grade and received her first pair of glasses, she had no idea it was only the beginning of a long road ahead, filled with vision issues, and one that would lead to a #keratoconus diagnosis. Luckily, the now 28-year-old was able to find an eye doctor and treatment option that was right for her. Head to our blog to read her #KCJourney today! Link in bio!

Doctor Eye Health discusses why you shouldn’t ru

Doctor Eye Health discusses why you shouldn’t rub your eyes. Watch the video now!
#LivingWithKC #Keratoconus #EyeRubbing #eyehealth

Are you #LivingWithKC and interested in exploring

Are you #LivingWithKC and interested in exploring underwater? One member of our community is doing just that!

On our blog, Shradha discusses how she took the plunge and began diving into the depths of the ocean. with #keratoconus. Link in bio!

If you have progressive #keratoconus, your optomet

If you have progressive #keratoconus, your optometrist might be getting ready to fit you for #scleral lenses! We know you may have questions about what these lenses are and how to use and care for them, so we want to help.

Head to our blog to watch some videos on these important lenses. Link in bio!

Excited to announce that in a recent survey, the L

Excited to announce that in a recent survey, the Living with Keratoconus website was ranked as the #1 resource for people who are #LivingWithKC, followed by the National Keratoconus Foundation!

#Keratoconus #WorldKCday #KCconfidence

Did you know that #keratoconus can be genetic? Thi

Did you know that #keratoconus can be genetic? This #WorldKCday, make sure family members are keeping up with their eye exams!

Were a lot of questions running through your mind

Were a lot of questions running through your mind after you received a diagnosed? We asked some members of the #LivingWithKC community, and here are their responses.

Had you ever heard of #keratoconus before you or a

Had you ever heard of #keratoconus before you or a loved one was diagnosed with the progressive disease? According to our recent survey, 78% had not!

#LivingWithKC #WorldKCday #KCconfidence

Before you were diagnosed with keratoconus, how di

Before you were diagnosed with keratoconus, how did you manage your vision needs?

#LivingWithKC #Keratoconus #WorldKCday #KCconfidence

Today is #WorldKCday! Thank you to everyone in the

Today is #WorldKCday! Thank you to everyone in the #LivingWithKC community for sharing your experiences and helping raise awareness of progressive #keratoconus. #KCconfidence

World Keratoconus Day is November 10th! If you're

World Keratoconus Day is November 10th! If you're looking for ways to get involved, we've got some ideas - including sharing your #KCjourney on social media. Link in bio!

#LivingWithKC #Keratoconus #WorldKCday #KCconfidence

John loves to make people smile. To help spread jo

John loves to make people smile. To help spread joy, he teamed up with his dad to launch John’s Crazy Socks!

However, a #keratoconus diagnosis threatened his vision and the career he's so passionate about. This #DownSyndromeAwarenessMonth, read John's inspiring #KCJourney. Link in bio!

Sarah’s doctor had been monitoring her eyes for

Sarah’s doctor had been monitoring her eyes for years, so when she was diagnosed with #keratoconus, her mother, Sylvia, was shocked. On our blog, Sylvia is sharing her daughter's experiences and the challenges faced by individuals in the #DownSyndrome community. #DownSyndromeAwarenessMonth Link in bio!

Did you know that eye rubbing can be harmful to yo

Did you know that eye rubbing can be harmful to your eyes? Make sure to take proper care of your eyes, especially if you are #LivingWithKC!

Interested in learning about the link between #ker

Interested in learning about the link between #keratoconus and #DownSyndrome this #DownSyndromeAwarenessMonth?

Dr. Ann Ostrovsky, Director of the Keratoconus Program at NYU Langone Eye Center, is answering questions, offering advice to caregivers, and discussing the importance of early detection & treatment of KC. Head to our blog to see what she has to say - link in bio!

At 26, Christopher is unstoppable - he participate

At 26, Christopher is unstoppable - he participates in triathlons and loves watching movies. However, when his mother noticed issues with his vision, she knew he needed to see an eye doctor. This #DownSyndromeAwarenessMonth, Mary and Christopher are hoping to inspire others who have Down syndrome and are #LivingWithKC.

We know you have questions about corneal #crosslin

We know you have questions about corneal #crosslinking, and we're here to help! Read our latest blog to learn more about what to expect before, during, and after the FDA-approved procedure.

Do you ever feel like there is dust or debris in y

Do you ever feel like there is dust or debris in your #eyes causing you to rub them constantly? This unpleasant feeling is what led Adam to visit an optometrist, which started his #keratoconous journey. Read his story today.

Load More... Follow on Instagram

World Keratoconus Day