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Community Networks

There’s a KC community ready to help

There are several KC community forums and message boards online dedicated to better understand this disease. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the KC community.

Here are a few groups you can join to participate in the conversation.

Keratoconus Group (Follow)

Keratoconus Group (Join)

Keratoconus Community

Keratoconus on Reddit

The following is a list of resources for current or potential patients and their families. If you have a specific medical question, it is best to consult your doctor.

National Keratoconus Foundation

Alliance for Eye and Vision Research

Cornea Research Foundation of America

Prevent Blindness

Stay up to date

Receive the latest information, resources, and support to help you take on keratoconus.

Social Posts

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Living with KC

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@livingwithkeratoconus

Instagram

livingwithkc

Keratoconus symptoms may go unnoticed and often KC

Keratoconus symptoms may go unnoticed and often KC can be mistaken for other eye problems. If you are experiencing blurred vision, light sensitivity, and headaches, you should share that with your eye doctor!

To learn more, take the KC Quiz at CouldItBeKC.com!

Keratoconus symptoms may go unnoticed and often KC

Keratoconus symptoms may go unnoticed and often KC can be mistaken for other eye problems. If you are experiencing blurred vision, light sensitivity, and headaches, you should share that with your eye doctor!

To learn more, take the KC Quiz at CouldItBeKC.com!

Living with keratoconus can impact your daily life

Living with keratoconus can impact your daily life. Simple tasks like reading, driving, and watching TV may become challenging and worsen over time. But you don't have to suffer in silence. Team up with your eye doctor to be screened for KC.

Take the first step today and learn more at CouldItBeKC.com

If any of these symptoms sound familiar it may be

If any of these symptoms sound familiar it may be time for a visit to your eye doctor! 👀 Keratoconus is a progressive eye disease, so early detection is important to preserving vision.

#Keratoconus

To learn more, take the KC Quiz at the link in our bio!

Do you find yourself squinting to read or struggli

Do you find yourself squinting to read or struggling to see clearly at night? Are headaches and eye rubbing a daily occurrence? These could be early signs of keratoconus (KC), a progressive eye disease that may distort your vision and make daily tasks challenging. Remember, your eyes are irreplaceable - don't wait until it's too late to care for them.

Take the KC quiz to learn more at CouldItBeKC.com

Have you noticed that you are rubbing your eyes mo

Have you noticed that you are rubbing your eyes more often than usual? Blurry vision, frequent headaches, and difficulty driving at night could be signs of keratoconus (KC). If you or someone you know is experiencing these symptoms, it's important to take action sooner rather than later because KC is a progressive disease.

Learn more about KC at LivingWithKC.com

Here's a quick reminder that you shouldn't take yo

Here's a quick reminder that you shouldn't take your vision for granted! If you're starting to notice signs of keratoconus — like eye rubbing, blurred vision, or frequent headaches — it's time to make an appointment to see your eye doctor.

Learn more about KC at coulditbeKC.com

Did you know that having family members with kerat

Did you know that having family members with keratoconus (KC) could be a risk factor. While we don't know the exact cause of KC, genetics, the environment, and hormonal changes could all play a role.

Learn more at coulditbeKC.com

Have you noticed blurry or distorted vision? You a

Have you noticed blurry or distorted vision? You aren't alone. You may be one of many who suffer from keratoconus, an eye disease in which the cornea weakens and thins over time, causing the development of a cone-like bulge and blurry vision. Learn the signs and symptoms of keratoconus to start a conversation with your doctor at your next visit.

Need help explaining #keratoconus to your family a

Need help explaining #keratoconus to your family and friends? Visit our website for information on the disease and to hear from others who are #LivingWithKC. https://bit.ly/2noX4Ty

Our #keratoconus infographic focuses on understand

Our #keratoconus infographic focuses on understanding the disease. What symptoms of #keratoconus do you experience? https://bit.ly/2pM9JR4

Notice "The Rub" - a habit you may not notice coul

Notice "The Rub" - a habit you may not notice could be a sign of a vision problem you shouldn't ignore. Rubbing your eyes can be both a cause and a symptom of keratoconus, or KC, a progressive eye disease that may lead to significant vision loss.

Take the quiz at CouldItBeKC.com.

Shanice isn't letting her #keratoconus hold her ba

Shanice isn't letting her #keratoconus hold her back from competing as part of the U.S. Women’s Tackle Football National Team!

Prior to bringing home the gold medal at the IFAF World Championship in Finland this year, Shanice spoke to the Fairfax County Times to discuss her experience with progressive keratoconus and playing football at a professional level. Link in bio!

When Emily was in the eighth grade and received he

When Emily was in the eighth grade and received her first pair of glasses, she had no idea it was only the beginning of a long road ahead, filled with vision issues, and one that would lead to a #keratoconus diagnosis. Luckily, the now 28-year-old was able to find an eye doctor and treatment option that was right for her. Head to our blog to read her #KCJourney today! Link in bio!

Doctor Eye Health discusses why you shouldn’t ru

Doctor Eye Health discusses why you shouldn’t rub your eyes. Watch the video now!
#LivingWithKC #Keratoconus #EyeRubbing #eyehealth

Are you #LivingWithKC and interested in exploring

Are you #LivingWithKC and interested in exploring underwater? One member of our community is doing just that!

On our blog, Shradha discusses how she took the plunge and began diving into the depths of the ocean. with #keratoconus. Link in bio!

If you have progressive #keratoconus, your optomet

If you have progressive #keratoconus, your optometrist might be getting ready to fit you for #scleral lenses! We know you may have questions about what these lenses are and how to use and care for them, so we want to help.

Head to our blog to watch some videos on these important lenses. Link in bio!

Excited to announce that in a recent survey, the L

Excited to announce that in a recent survey, the Living with Keratoconus website was ranked as the #1 resource for people who are #LivingWithKC, followed by the National Keratoconus Foundation!

#Keratoconus #WorldKCday #KCconfidence

Did you know that #keratoconus can be genetic? Thi

Did you know that #keratoconus can be genetic? This #WorldKCday, make sure family members are keeping up with their eye exams!

Were a lot of questions running through your mind

Were a lot of questions running through your mind after you received a diagnosed? We asked some members of the #LivingWithKC community, and here are their responses.

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World Keratoconus Day

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