Journeys

More than 317K people follow Ash Arellanes – @demi_the_vlog_dog – on TikTok because of the spirited, engaging, and informative video content she shares about her journey with keratoconus (KC), a progressive eye disease. It’s hard to imagine this 27-year-old young woman could barely see just six years ago. Now, she is committed to spreading awareness for this underdiagnosed, sight-threatening eye condition.

In the first grade, my son Luke began complaining of vision issues, such as blurriness and double vision. To help correct this, we brought him to an optometrist who prescribed him glasses to help him see. What my wife and I didn’t realize was that our son was living with a progressive eye disease known as keratoconus.

During their initial appointment, the corneal specialist explained that 5-15% of people with Down syndrome also have keratoconus and recommended that Sarah consider FDA-approved corneal cross-linking…

Growing up, I thought I had perfect vision. I didn’t wear glasses or contacts and my doctors never noticed anything problematic with my eyes…

Growing up, my son Charlie was smart, funny, and liked to play sports and spend time outdoors. However, Charlie began complaining of vision issues in his early childhood…