Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Learn More Through KC Journeys

Keratoconus Journey: Gage

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With the help of his doctors and corneal cross-linking, Gage is happy to be living on campus and being able to experience college the way he had always envisioned…

Keratoconus Journey: Nic

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As an airplane mechanic, Nic depends on his eyesight to inspect and repair airplanes. However, when his vision began to fail, he needed to find a “fix” for that as well…

Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.

Keratoconus

Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.

Cross-Linking

Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

It is estimated that...

1 Out of Every 2,000

persons in the general population have Keratoconus1

You can find more information from the National Keratoconus Foundation.

1. Kennedy R. H., Bourne W. M., Dyer J. A. A 48-year clinical and epidemiologic study of keratoconus. The American Journal of Ophthalmology. 1986;101(3):267–273. doi: 10.1016/0002-9394(86)90817-2.

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

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2 days ago

Living with KC

Who else can relate?! #LivingWithKC #glassesproblems ... See MoreSee Less

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3 days ago

Living with KC

"I am extremely grateful to have had the opportunity to continue my education on time and being able to look towards my future without fear." - Gage on #LivingWithKC and being a college student. www.livingwithkeratoconus.com/kc-journeys/keratoconus-journey-gage/ ... See MoreSee Less

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Growing up with vision issues, Gage assumed everyone saw the world like he did. It wasn't until the summer before his freshman year of college that he realized something was wrong. Read Gage's #KCJournye today! https://t.co/9UQnxCd8Ab

"As a result of cross-linking, it helped halt the progression of the disease. But it also helped me to be fit for better contacts." - Shanice Cole, tight end for the Black Widows @rvaBlackWidows #LivingWithKC https://t.co/gCoob7a67x

"I am extremely grateful to have had the opportunity to continue my education on time and being able to look towards my future without fear." - Gage on #LivingWithKC and being a college student. https://t.co/9UQnxCd8Ab

Insurance update - Emblem Health is now covering #crosslinking! https://t.co/B5stNJdheA

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