Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.

Advocacy

Support Groups

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RESOURCE: How to Navigate the Insurance Appeals ProcessDownload PDF

Learn More Through KC Journeys

Keratoconus Journey: Adam

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When he had first heard of cross-linking, Adam was initially terrified. However, he knew that he could no longer put up with the pain and frustration of dealing with contact lenses…

Keratoconus Journey: Dan

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In his early teens, Dan first began noticing a minor change in his vision but assumed it was nothing serious, since it wasn’t affecting his daily life. His vision never impacted his studies…

Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.

Keratoconus

Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.

Cross-Linking

Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

It is estimated that...

1 Out of Every 2,000

persons in the general population have Keratoconus1

You can find more information from the National Keratoconus Foundation.

1. Kennedy R. H., Bourne W. M., Dyer J. A. A 48-year clinical and epidemiologic study of keratoconus. The American Journal of Ophthalmology. 1986;101(3):267–273. doi: 10.1016/0002-9394(86)90817-2.

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

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FDA approved #crosslinking is now widely covered by insurance! Visit our website to see if your insurance plan is on the list.https://t.co/Uhw3Nh4M8b

Is #crosslinking right for you? Visit our website today to learn more about the only FDA approved therapeutic treatment option for those #LivingWithKC. https://t.co/9uF0YTpvrd

#FactFriday - While the exact cause of #keratoconus is unknown, it is believed that genetics, the environment and the endocrine system all play a role. Visit our blog to learn some more facts about the condition that you or a loved one may be living with https://t.co/rXFJwKO0vx

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