Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.


Support Groups

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RESOURCE: How to Navigate the Insurance Appeals ProcessDownload PDF

Learn More Through KC Journeys

Keratoconus Journey: Jackson

| KC Journeys, Lauren McGuiggan | No Comments
Jackson has had a rocky relationship with his vision for years. He tried his best to adapt to his declining vision, and even got his first pair of glasses, however…

Keratoconus Journey: Casey

| KC Journeys, Lauren McGuiggan | No Comments
Casey noticed his vision was blurry at just 15 years old. An initial diagnosis determined he had a cataract, but after undergoing the recommended corrective surgery, his vision only continued…
Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.

Looking for a Cross-Linking Expert? Find an Expert that Offers Cross-Linking Near You Today!


Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.


Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

Explore Our Keratoconus Infographic Download PDF

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

Learn More Through Our Facebook Page

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Living with KC

Today is National Donate Life Blue & Green Day! If you're celebrating and wearing your blue and green, tag #LivingWithKC in your photos on social media. #DonateLife #OrganDonor #NationalDonateLifeMonth ... See MoreSee Less

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Learn More Through Our Twitter Page

Today is National Donate Life Blue & Green Day! If you're celebrating and wearing your blue and green, tag #LivingWithKC in your photos on social media. #DonateLife #OrganDonor #NationalDonateLifeMonth

Have you ever noticed your eye twitch? @AcademyEyeSmart breaks down some reasons why your eyelid might be twitching, including stress or being tired. #LivingWithKC

Bekah documented her iLink FDA-approved #crosslinking experiences to share with people she connected with along her journey. Watch her video series today!

Looking for a pair of blue light glasses? @mnt breaks down some of the best #lenses to help reduce digital #eyestrain, prevent headaches, and improve sleep.

"If they have a family history of #keratoconus & the children start needing glasses, I would recommend getting screened for KC - especially starting at age 12." - Dr. Darcy Wolsey, Eye Institute of Utah (@EIUvision).


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