Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.

Advocacy

Support Groups

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RESOURCE: How to Navigate the Insurance Appeals ProcessDownload PDF

Learn More Through KC Journeys

Keratoconus Journey: Nishi

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In November 2016, about seven months after cross-linking became FDA approved and over two years after her initial diagnosis, Nishi received the procedure in her left eye…

Keratoconus Journey: Gage

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With the help of his doctors and corneal cross-linking, Gage is happy to be living on campus and being able to experience college the way he had always envisioned…

Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.

Keratoconus

Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.

Cross-Linking

Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

It is estimated that...

1 Out of Every 2,000

persons in the general population have Keratoconus1

You can find more information from the National Keratoconus Foundation.

1. Kennedy R. H., Bourne W. M., Dyer J. A. A 48-year clinical and epidemiologic study of keratoconus. The American Journal of Ophthalmology. 1986;101(3):267–273. doi: 10.1016/0002-9394(86)90817-2.

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

Learn More Through Our Facebook Page

2 days ago

Living with KC

Looking for a #crosslinking expert near you? Visit our website to find a specialist who is performing the FDA approved procedure: www.livingwithkeratoconus.com/find-an-expert/ #KCExperts ... See MoreSee Less

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2 days ago

Living with KC

Do you play video games and are looking to get an edge on your opponents? This #SaveYourVisionMonth, the American Academy of Ophthalmology Association is encouraging gamers to use the 20-20-20 rule to give their eyes a rest from digital eye strain ow.ly/h2G850n210p ... See MoreSee Less

View on Facebook

3 days ago

Living with KC

At this time, the exact cause of #keratoconus is unknown. In response to this, Fight for Sight announced its support of an investigation into the causes of KC. ow.ly/Q45l50mGCi5 ... See MoreSee Less

View on Facebook

4 days ago

Living with KC

#ICYMI - Dr. Joseph D. Iuorno of Commonwealth Eye Care Associates is on the #LivingWithKC blog discussing FDA approved #crosslinking and insurance. Visit our website to learn more! ow.ly/qltz50mGASC ... See MoreSee Less

View on Facebook

Learn More Through Our Twitter Page

#FactFriday - Dry eye occurs when the #eye does not produce enough tears or when they quality of the tears can't keep the eye adequately lubricated. The @aao_ophth shares a variety of treatment approaches that may help the condition: https://t.co/ei3U6lVkZx

Looking for a #crosslinking expert near you? Visit our website to find a specialist who is performing the FDA approved procedure: https://t.co/lPQNrdMU7w #KCExperts

Do you play video games and are looking to get an edge on your opponents? This #SaveYourVisionMonth, the @AOAConnect is encouraging gamers to use the 20-20-20 rule to give their eyes a rest from digital eye strain https://t.co/vncgitBVwY

At this time, the exact cause of #keratoconus is unknown. In response to this, Fight for Sight announced its support of an investigation into the causes of KC. https://t.co/WzKfSMibDZ

#ICYMI - Dr. Joseph D. Iuorno of @CommonwealthECA is on the #LivingWithKC blog discussing FDA approved #crosslinking and insurance. Visit our website to learn more! https://t.co/vA0eDZjh0J

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