Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.


Support Groups

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RESOURCE: How to Navigate the Insurance Appeals ProcessDownload PDF

Learn More Through KC Journeys

Keratoconus Journey: Brent

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Brent is not known for slowing down when things get tough. As a personal trainer, he tends to power through. He’s accustomed to encouraging his clients to do the same,…

Keratoconus Journey: Baylen

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In 5th grade, Baylen started wearing a contact lens in his left eye to correct for his nearsightedness. While the contact seemed to manage the vision issues he was facing…
Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.


Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.


Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

Explore Our Keratoconus Infographic Download PDF

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

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Is #crosslinking right for you? Watch our video to learn more about this FDA approved therapeutic treatment. ... See MoreSee Less

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Keratoconus: Roadmap To Treatment [Oct 8, 2019 Webinar] ... See MoreSee Less

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Is #crosslinking right for you? Watch our video to learn more about this FDA approved therapeutic treatment.

Hey #LivingWithKC community - our blog answers your top questions around insurance coverage for FDA approved #crosslinking. Read it today!

"I was diagnosed with Keratoconus at 13. I received a corneal transplant in 2016 which gave me the gift of sight back in my right eye.

"This is allowing me to fulfill my dream of becoming a Children's Nurse. I'm forever grateful to my donor and her family." #WorldSightDay

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