Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.


Support Groups

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RESOURCE: How to Navigate the Insurance Appeals ProcessDownload PDF

Learn More Through KC Journeys

Keratoconus Journey: Dan

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In his early teens, Dan first began noticing a minor change in his vision but assumed it was nothing serious, since it wasn’t affecting his daily life. His vision never impacted his studies…

Keratoconus Journey: Bekah

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Bekah went to her local Department of Motor Vehicles (DMV) near Austin, Texas, to renew her expiring driver’s license, but she didn’t expect what would happen next…

Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.


Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.


Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

It is estimated that...

1 Out of Every 2,000

persons in the general population have Keratoconus1

You can find more information from the National Keratoconus Foundation.

1. Kennedy R. H., Bourne W. M., Dyer J. A. A 48-year clinical and epidemiologic study of keratoconus. The American Journal of Ophthalmology. 1986;101(3):267–273. doi: 10.1016/0002-9394(86)90817-2.

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

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Are you into #EyeHealth? We are, too! Help us promote #HealthyVisionMonth! This year, we’re encouraging young adults to make eye health a priority now and for years to come. Spread the word:

#FactFriday - 23 million adults in the US report experiencing symptoms of #DryEye. Read our blog to learn more about the causes, symptoms, and treatments for this condition.

In February 2019, Dan, a college student #LivingWithKC, was selected to be @Avedro_Inc's "Person of Honor" and ring the @Nasdaq closing bell to commemorate the company's IPO. Read Dan's #KCJourney to learn more about his experience!

Dan isn't letting his #keratoconus get in the way of becoming a member of the NYPD. Read his #KCJourney to learn how he found a treatment to preserve his vision.

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