Keratoconus Community Networks

There are several KC community forums and message boards online that we encourage you to participate in to better understand KC, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.


Support Groups

Avedro is not responsible for content on third-party sites.

Learn More Through KC Journeys

Cedric’s Story

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Considered a “failure to thrive” infant when he was born, Cedric was only given a 10% chance to live by his doctors. Cedric was taken in by one of his attending nurses who made him a part…

Kiana’s Story

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Kiana’s struggle with her vision began during her senior year of high school in Boston, Massachusetts. Instead of looking forward to her future, Kiana found herself experiencing troublesome…

Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.


Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.


Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

It is estimated that...

1 Out of Every 2,000

persons in the general population have Keratoconus1

You can find more information from the National Keratoconus Foundation.

1. Kennedy R. H., Bourne W. M., Dyer J. A. A 48-year clinical and epidemiologic study of keratoconus. The American Journal of Ophthalmology. 1986;101(3):267–273. doi: 10.1016/0002-9394(86)90817-2.

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

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More insurance companies are covering FDA approved cross-linking. To see the most updated list, visit:

For prescribing info:
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#Keratoconus hasn't stopped Jessa from following her passion & playing ⚽ What are your favorite hobbies?

Researching #keratoconus treatment options? These videos from the National Keratoconus Foundation could help. #lenses #crosslinking

Use #LivingWithKCLenses to tell us what worked for you! #KCLenses

Richard nearly gave up on being a firefighter because of #keratoconus. Thankfully he found a treatment that allowed him to continue his dream job!

More insurance companies are covering FDA approved cross-linking. To see the most updated list, visit:

For prescribing info:

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