Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.

Advocacy

Support Groups

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RESOURCE: How to Navigate the Insurance Appeals ProcessDownload PDF

Learn More Through KC Journeys

Keratoconus Journey: Joe

| KC Journeys, Lauren McGuiggan | No Comments
Although Joe had never heard of keratoconus before, after learning more about the condition, the diagnosis began to make more sense. For years he had experienced many of the symptoms,…

Keratoconus Journey: Chris H.

| KC Journeys, Lauren McGuiggan | No Comments
Chris’ life has always revolved around baseball. But when he started to have difficulty seeing, he began looking for solutions to strikeout his vision challenges.
Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.

Looking for a Cross-Linking Expert? Find an Expert that Offers Cross-Linking Near You Today!

Keratoconus

Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.

Cross-Linking

Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

Explore Our Keratoconus Infographic Download PDF

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

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4 days ago

Living with KC

Timeline PhotosWater and contacts don’t mix. Germs found in water can stick to contacts & infect your eyes: ow.ly/rrmk50B51OK #ProtectYourEyes #ProtectingSightEmpoweringLives #ContactLenses #HealthTips ... See MoreSee Less

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5 days ago

Living with KC

You may be eligible to receive up to $100 towards your non-reimbursable copay expenses. Enroll in the #LivingWithKC Patient Support Program today! bit.ly/3hSv1mN ... See MoreSee Less

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Chris’ life has always revolved around baseball, but when his vision started to affect his ability to play the sport and ultimately his career, he knew he needed to take action. Read Chris' #KCJourney to learn more about his experiences #LivingWithKC. https://t.co/q1DaFOphYr

Did you know that #vision screenings are crucial for young children since they may not be able to describe certain vision problems? It's also important to monitor their vision if there is a known history of #keratoconus in the family. https://t.co/U3O6rGEp6L

Water and contacts don’t mix. Germs found in water can stick to contacts & infect your eyes: https://t.co/JOGZ3qDGdG #ProtectYourEyes #ProtectingSightEmpoweringLives #ContactLenses #HealthTips

You may be eligible to receive up to $100 towards your non-reimbursable copay expenses. Enroll in the #LivingWithKC Patient Support Program today! https://t.co/42jWLA6deR

Are your kids or loved ones learning from home this fall? As screen-time continues to be a bigger part of their lives, make sure you're taking proper precautions to protect their #eyes. https://t.co/FbyBRTk6ps #RemoteLearning

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