Keratoconus Community Networks

There are several keratoconus community forums and message boards online that we encourage you to participate in to better understand keratoconus, FDA-approved cross-linking and other treatment options. These are the most common places that patients go to seek out information about their diagnosis and build relationships with members of the keratoconus community.

We encourage you to join these groups and participate in the conversation.

Resource List

Following is a list of resources we have assembled for current or prospective patients and their families. If you have a specific medical question, it is best to consult your physician.


Support Groups

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RESOURCE: How to Navigate the Insurance Appeals ProcessDownload PDF

Learn More Through KC Journeys

Keratoconus Journey: Trayci

| KC Journeys, Lauren McGuiggan | No Comments
Growing up, Trayci didn’t know a life without contacts or glasses, so when she had the option to receive Lasik, she took it. However, 14 years after receiving the procedure,…

Keratoconus Journey: Luke

| KC Journeys, Lauren McGuiggan | No Comments
Luke’s journey began at a young age. In 4th grade, he started complaining of general vision issues, including blurry and double vision. That was when he, accompanied by his parents,…
Patient FAQs

Discover answers to the most common questions surrounding cross-linking

Visit the Patient FAQ Section to learn more.

Looking for a Cross-Linking Expert? Find an Expert that Offers Cross-Linking Near You Today!


Learn more about this rare eye condition

View our Living with Keratoconus Patient Brochure.


Learn more about this minimally invasive procedure

Visit the Cross-Linking Section to learn more.

Explore Our Keratoconus Infographic Download PDF

Corneal cross-linking provides patients a much-needed option to treat this debilitating disease. Patients suffering from progressive keratoconus can now receive a therapeutic treatment that has been rigorously tested and approved."

Mary Prudden, Executive Director for the National Keratoconus Foundation

Learn More Through Our Facebook Page

1 day ago

Living with KC

Are you #LivingWithKC and looking for some tips on using and caring for #sclerallenses? Visit our blog to hear from Dr. Stephanie Woo of Contact Lens Institute of Nevada on this topic! ... See MoreSee Less

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2 days ago

Living with KC

Timeline PhotosFloaters can either be harmless or a sign of a vision-threatening eye condition. Find out when you should see an ophthalmologist for floaters: #covid19 #coronavirus #pandemic #eye #health #eyehealth #floaters #healthtips ... See MoreSee Less

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Learn More Through Our Twitter Page

Are you #LivingWithKC and looking for some tips on using and caring for #ScleralLenses? Visit our blog to hear from Dr. Stephanie Woo of Contact Lens Institute of Nevada on this topic!

Did you know that many people who have a #VisionImpairment can still enjoy skiing and other winter sports? VisionAware shares some tips for skiers #LivingWithKC

My goal in life is to raise awareness for my eye disease/disability. Since it’s a rare condition, not many people know about it. 👁🎗💜 #Keratoconus

Is quarantine ruining your eyes? AAO spokesperson Sunir Garg, MD of @Wills_Eye discusses the facts with @TheAtlantic: #quarantine #covid #covid19 #pandemic #quarantinelife #coronavirus #staysafe #screens #screentime #technology #dryeye #health #healthtips

What does "Epi-off," "Epi-on," or C3R really mean? Read our blog to learn exactly what these common #crosslinking terms mean to clear up any confusion.

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